Getting back to the everyday ...

It really is quite hard to get my head around what has happened this year sometimes. It was the middle of February when Donna and I noticed a lump on the side of my neck. It wasn't large, it just wasn't something that should have been there. The next day, I saw my GP, Andrew, who poked and prodded, and muttered that he couldn't say what it was but given my history, we'd better get it checked out (I think he knew, actually, but he was probably right not to expand on his suspicions at that point).

A week later, I saw the ENT consultant, who arranged a biopsy and this confirmed that I had Hodgkin's Lymphoma (Stage 1a, very early in it's development, thankfully), and I was then bounced to the oncology consultant, Dr Tueger, who then took charge. Well, he'd probably sayhe did, but his specialist nurses did, really (*GRINS*), and just over a month after investigations had begun, I started ABVD chemotherapy on March 31st.

I'd kept working up to that point, trying to tie things up with cases and clear my desk for what I originally told people would be "a month off while I reviewed how I coped with chemo" (oh, I am such an optimist, did you know that?). Though I had good weeks when I still felt well over the three month course of chemo (and even kept running on the good days), the chemo regularly wiped me out for 7 or 8 days at a time, so returning to work justdidn't come into the picture at all.

It was hugely frustrating, as anyone who knows me will know that I don't like "not doing". I always seem to have something I'm working on or planning - I'm not on-the-go all the time, and I can veg on the couch with the best of them, but I always have some project or other bubbling under. And during this period, it was really difficult to motivate myself for days on end to do very much at all (other than watch the World Cup, which, conveniently filled the latter part of my treatment cycle).

And when the chemo ended, on June 16th, that still wasn't it, because it took about another 2 - 3 weeks for the main effects to wear off. Then, on July 7th, I met with Dr Tueger to be told that I was in complete remission. So, in just under five months, I went from finding a lump on my neck to the bleakness of a second cancer diagnosis, through the trials and tribulations of the treatment, to being in complete remission!

Head-spinning, really, don't you think? I mean, just how great is modern medicine, and how brilliant a service is the NHS when you stop and think about it? I have to stop and pinch myself sometimes as I try to make sense of what's happened over these past few months. The relief we (Mrs 365er and I) feel is huge, obviously. While I am still having radiotherapy (another 2 weeks of this needed, just to be sure, you know), the reality is that the cancer is gone, history, just another story to tell - how amazing is that!

Now, it's time to get my life back on track. I started back to work again in the middle of July (almost three months after I'd optimistically expected i would!), but I am determined to move a little slower than maybe I have in the past; taking things easier and saying "no" to things more often that I have done in the past. I know the work will come in, so I don't really need to panic, the bank balance will grow again in time, and I'm sure that before too long, I'll be back in the swing of things on that front. Soon, it'll be the old routine again, and I have to say, I'm kind of looking forward to that.

As for my 2nd 365challenge, well, having over four months "out", with very limited running has really put paid to me completing the challenge of running 36.2 marathon distances in a year, but I haven't completely given up on it. I have been trying to get back to running - it's been VERY hard this last couple of weeks, maybe the radiotherapy has something to do with that! - but as I build up again over the coming weeks, I plan to continue with my effort and just keep going until I've hit my target miles. It may take me 18 months instead of 12, but I will complete it.

And while I'm doing that, I'll continue to support any 365ers who come on board to join me in raising as much as we can for the fantastic work of Cancer Research UK. I know that if they were not out there funding research and developments in cancer care, these last few months might have been very different for me, so if I can raise more money that ultimately means other people's experiences of cancer prove as positive as my own, then that's what I'll keep doing. Care to join me anyone? Anytime ...? 

2/3rd of the way through chemo ... and still running (well, just a bit!)

On Wednesday, May 19th, I completed my 4th session of chemotherapy, which completed my 2nd cycle (2 sessions per cycle), leaving just one more cycle to go (hooray!). As long as I can have the treatments as scheduled, on June 2nd and 16th, I'll be done this part of my treatment! After that, I'll have a scan to see if there are any nasties lurking, and depending on the outcome of that scan, I may or may not need further chemo or possibly radiotherapy ... so there is a real chance that all of this will be done and dusted by the end of the summer ... here's hoping, eh?

I've found the chemo generally to have gone well. There is a pattern to the effects. For a couple of days afterwards, I'm fine, then by the end of day 2 post-treatment, my energy levels begin to flag. Mornings seem okay-ish, but by lunchtime, I can feel like a wrung-out cloth, and just need to sleep, which I do for a couple of hours usually. This weariness lasts for about 7 days, and then I start to gradually feel I can do things again, usually for about 5 days before I have to go for my next treatment, when the cycle starts all over again. 

I've mostly been fortunate not to suffer from nausea following the treatment, though on this last treatment, when I had only my second (once monthly) dose of Pentamine, which is given with an inhaler in an isolated room as it is so toxic, I really struggled. Pentamine was prescribed for me as my neutrophils (key white blood cells, vital for fighting infection) had dropped significantly following chemo, possibly in part due to some tablets I'd been prescribed as part of the treatment. The Pentamine was prescribed instead of the tablets and seemed to work, but this time ... uh-uh! It was a real struggle inhaling it, I felt nauseous after just a few puffs, but persevered with it for about 10 minutes, on and off, until I couldn't take any more. I left the room and spoke to one of the nurses, who spoke to the consultant, who said "STOP!" Got about half of the dose in, so we'll have to see if it worked, but I walked home from the hospital yesterday pretty shaken by that one. Hopefully I won't have to have it again, as it is only monthly and by the time it is next due, I'll have completed my final chemo cycle. Fingers crossed.

The other promising news about the treatment, however, is that when I saw the Senior House Officer a couple of weeks ago, he gave my neck a thorough physical examination and announced that he couldn't find any evidence of the lump that started this whole episode! So that was great news ... clearly the chemo has broken up the nasty little bugger, but we'll have to wait for the scan to see if it has killed it off completely ... here's hoping.

On to other things now ... while clearly, I'm not my super-fit self any longer what with being put through the wringer every fortnight, when I DO find I have some energy, I have been able to get a few runs in still, adding just a few more miles to my 365challenge total. Yesterday, Thursday morning, the day after my last chemo, I managed a 3.5 mile run, but my total for April and May to date is only about 32 miles, so I suspect I'll have to extend my challenge this time ... I hope you can all understand why ... :)

As for the "will he or won't he lose his hair" bet scam ... well, I'm delighted to tell you that so far, 4 treatments in, I still have a full head of hair (see last blog post for photo evidence - hope its not too shocking for you all). Even better though, is the fact that this little ruse has raised a whopping £935 so far to add to my personal 365challenge pot! Now, I'm just £134.45 short of hitting the £10K mark, which would be quite a milestone. If you'd like to help make that happen, please visit http://www.justgiving.com/365challenge or go and read that "hair challenge" blog first for a laugh!

Overall, the 365challenge has now raised over £30K for Cancer Research UK, and there is more to come ... further announcements soon, I hope. As part of further promotions for the 365challenge, I've recorded a series of videos that you can watch on YouTube anytime. I'd love to hear what you think, so when you have a moment, maybe you'll pop along and have a look - if you click on the "3 videos" tag just below the title on that page, you'll see the other videos in the series ...  there are some other 365 videos listed down the side of the page, however, that are NOTHING TO DO with my effort, so please don't worry about them!

Well ... I'll stop there, I think ... there is more, but I'll save that for the next time. Feel free to send thoughts, questions or comments, as I love to hear what people think about these adventures of mine! 'Til next time ... stay well, and please, if you find a lump ... get it checked out. Believe me, early treatment can make ALL the difference.

Cheers for now

Colin

chemo is taking it's toll ... but not on all fronts!

I've been a little quiet on here recently. I guess I've been finding the chemotherapy treatment pretty knackering, really, and this has spread into my ability to attend to my blogging duties!

I've had 3 (of 6) chemo treatments so far, with the next one due tomorrow (Wednesday May 19th), and I think I've fallen into a familiar pattern. For a couple of days post-chemo, I'm okay, but then the weariness starts to hit, and I'm pretty shattered for about a week or maybe a little more. Then my energy levels start to creep back up, just in time for my next fortnightly dose of chemo ... and the cycle starts all over again.

After session 2, I was really floored and didn't run at all during that fortnight, but since my last treatment, I've managed 3 runs, getting around 3 miles in each time, which I've been really pleased with. If I can keep that up, at least when all this is over, I won't be starting back into my running totally from scratch.

And I really do want to get back running again properly when this is all over. I went along to watch the Chester Half Marathon on Sunday - which I should have been taking part in - and just felt that I wanted to be a part of all this once again ... roll on July/August, when treatment should be complete and hopefully, I'll feel normal again and my fitness can get back to where it was just 6 weeks ago.

And just for the record, as I await session 4, I'm pleased to report that I'm still hanging on to my hair! So thank you once again to all you folks out there who have contributed to my "bet on my hair loss" fund-raising effort, which has raised £850 or so to date, helping bring the 365challenge total to over £30K raised for Cancer Research UK, and I hope that those of you who bet my hair would be gone by now aren't going to feel too short-changed!

running through chemo ...

When I started out on my chemotherapy treatment for my Hodgkins lymphoma, I spoke to my cancer nurse about whether or not I would be able to keep running while I was going through the 3-4 months of treatment. I was pleased when she told me that she couldn't see why not, though warned that I would feel tired at times, and I should really listen to my body rather than trying to blindly stick to an inflexible running programme. 

Immediately after my first session of ABVD chemotherapy on March 31st, I actually felt great, so the next day, I was out on the road for a 3.6 mile run, feeling strong and wondering what all the fuss was about! And then, it hit me! By April 3rd, I was basically knackered! I felt as if someone had flicked a switch and turned the power off, or that my engine had run out of gas. Mornings were okay-ish, but by lunchtime, I was drained, and needed to sleep for an hour or two. And any thoughts of running were totally out the door - I remember watching a runner dodge past pedestrians on the street one day, and wondering how on earth anyone could do something THAT energetic!

The weariness lasted about a week, and gradually, I began to feel half-energetic again. So by April 11th, I felt able to try a gentle jog of a couple of miles. That went okay, so I tried 3.5 miles on the 13th, just before I was due my next chemo on the 14th. I thought that that would be the pattern ahead of me: limited energy, and grabbing a couple of miles here and there when I felt I could. Not exactly what I'd hoped for, but in the circumstances, the best I think I could have expected. However, because my white blood cell count (in particular my neutrophils, which are the main infection fighters in my blood) was still low from my first treatment, my 2nd chemo treatment was postponed for six days, and in the interim, my energy levels recovered even more, so I managed another 3.5 miles on the 16th. 

Then this morning, the 18th, it being my birthday, I thought I'd make a bit of an effort and have a longer run. I mean, it's only three weeks since I ran the Wilmslow Half Marathon (three days before my chemo started), so I knew I had to have some sort of residual fitness still (didn't I?). So off I set, at around 7.30 (I'm a very sad early riser: I'd already walked the dog before this, so had kind of warmed up a little too). I wanted to do at least a 10K/6 mile run, and so I took a lovely route that took in part of a local cycle way that runs out into the surrounding countryside. I was running into the rising sun, with blue skies overhead, and mist burning off the land ahead of me as I ran. The sun itself was a wonderful burnt orange as it climbed into the sky, probably thanks at least in part to the Icelandic volcanic ash in the atmosphere. It was all truly magical, and the sense of wonder was added to by a heron, which glided alongside me at one point, landing majestically by a small pond ahead, then stretching it's neck, opening it's wings and slowly taking flight again, sailing low across the fields into the mists. 

With this to distract me, running couldn't have come easier at that point, and I found myself stepping out along the track feeling very comfortable and strong. The run back home from the turn was not quite effortless, but it felt good, and I completed 6.6 miles in 59 minutes, averaging 8.59 minutes per mile (data courtesy of RunKeeper Pro on my iPhone *GRINS*), a speed slightly faster than my usual pace, so all in all, it was a run that I was extremely pleased with.

I now face my next chemo on April 20th, white blood count/neutrophils permitting, so if it goes ahead (fingers crossed), I guess I can look forward to a similar pattern of energy/weariness ahead. If the interim blood count is low again in a week's time, I guess the cycle may come to stretch to every three instead of every two weeks, and maybe my "running through chemo" will increase in that third week again. But, while I am enjoying being able to get out there once again and pound the pavements, in all honesty, I think I'd settle for less running for a while if I could just get through this chemotherapy treatment sooner rather than later. But hey, all that appears to be out of my control ... my body will do what it needs to get me through this, I'm sure, and the treatment will take as long as it needs to take. All that really matters is that, at the end of it all, I get the all clear, which is what is expected ... and when that happens, I'll probably celebrate with a glass of something ... after I've been for a run! :D