mmm, a mixed response to my ABVD chemo ...

Last Thursday, the day after my 1st chemo treatment, I woke up feeling great! So good, in fact, that I headed off to the gym and went out from there for a 30-odd minute run. I felt fine through it, and even contemplated extending the route an extra mile or three, but good sense (not something I'm always noted for) took over, and I kept it short. 

Felt good throughout the rest of the day, and woke the next feeling similarly good. Tempted to run again, but once more, this strange common sense-thingy took hold of me, and I decided not to push things just yet. But I did find myself wondering, hopefully, if maybe I might get through this experience relatively unscathed. 

Still good on Saturday morning (C-day +3), and so headed off to meet friends, Mel and Stu, and go to the Chester Food and Drink Festival at the Chester Race Course. This is an annual event and something Donna and I really enjoy: lots of food stalls, samples, and cookery demonstrations, good fun all round. Of course, this year, I wasn't able to try any of the samples as I have to watch what I eat, but I could still enjoy seeing what was on offer and buying various things to have later at home, once we'd cooked them. One highlight is usually the hog roast lunch, but that was out of bounds for me too (not allowed any takeaway-type foods or food from deli counters for the duration of the treatment; possibility of picking up germs, which under normal circumstances, I could cope with, but with depleted white blood cells, my resistance to possible infection is lowered). Donna had some though (I wasn't going to deny her that, now come on!), but insisted that it wasn't very nice at all :-P! 

However, the day out (well, several hours anyway), and possibly the crowds, began to take their toll, and I was feeling quite shattered as we made our way home. Later that evening, I also noticed a niggling sore throat starting. Checked my temperature, and it was okay at 36.2C, but took a couple of precautionary hot Lemsip drinks through the rest of the day. This seemed to work, as I woke Easter Sunday morning with my throat feeling fine. It was a lovely morning, so I took the opportunity to mow the lawn - the first cut of the year, folks, I know, how could I? - but I felt I had the energy for it, and, following on from the advice of Nurse Dee, I was listening to my body and doing what I felt able to.

But since then, I have been noticeably more tired, and have concluded that I need to go a little bit more slowly about things. This morning, after a broken nights' sleep, I am knackered. I really felt quite queasy at about 3.00 am and thought perhaps the nausea that is threatened to come with this treatment sometimes was going to hit good and proper, but a quick couple of tablets to counteract this (Domperidone ROCK!) saved the day/night.

This morning, Easter Monday, I reckon I'm going to have a very slow day ... no nonsense, no "maybe just a little ...", I'm officially resting today. For once, as so many tweets and Facebook messages have suggested to me over the past couple of days, maybe I CAN be sensible ... :)

the day nothing (much) happened ...

I'm not sure what to say about today's "non-appointment" with my haematologist. It was billed as the appointment where I'd learn my final diagnosis, where the views of the Professor in Liverpool would have been canvassed, and a final plan of attack on my cancer would be outlined. There is still a little doubt over quite what my cancer is, so the second opinion was being awaited with keen interest: today was going to resolve this and clarify for Donna and me just what to expect.

But ... the second opinion is still not back! Dr Tueger was very apologetic, explaining that the Prof has been away and only got back yesterday, and as she is the go-to second opinion girl for all of the North West of England, my case wasn't necessarily at the top of the pile ... so, despite the fact that Dr Tueger even left the office to call through to see if she'd had a chance to look at my biopsy yet (she hadn't), we're still in a sort of mini-holding pattern for now. 

So the appointment deteriorated into a bit of a farce, with plans being outlined for treatment, then changed, then re-instated. Dr Tueger and his nurse, Dee, seesawed over what should happen next, with me pitching in, saying I was ready to roll on the 31st, and I'd built my schedule around that, including hoping to attend a 3-day workshop in one of the non-treatment weeks in April, so delaying the start of treatment would be inconvenient (I'm not exactly shy about saying my bit with medics, really). 

In the end, we agreed that, for now, we go ahead with the 31st as the target date for starting treatment, with the proviso that should the Prof in Liverpool come back with a different finding to Hodgkin's lymphoma, then this might need re-thinking. So Donna and I slipped off to a side room with Nurse Dee, who explained more about Hodgkin's to us, and about ABVD, the chemo cocktail I expect to become my medicinal tipple-of-choice over the coming months, and its possible side effects. Lots to take in and take away to read, but while the side effects are not to be looked forward to, there do seem to be drugs that can be taken to counteract these, so really it is all about suck-it-and-see to determine just how I respond to the intense poisons that I have to take into my body over the coming months. 

And, me being me, of course one of my questions was about whether or not I would be able keep running through my chemo. I was delighted when Dee told me that as I was running regularly now, there really was no reason why I shouldn't keep going, but that I should listen to my body, and if it said rest for a while, then I should rest for a while! Here's hoping I do, but also that my body will let me keep on running.

Despite the semi-chaos and indecisiveness of the appointment though, I came away quite positive overall and keen to get this treatment up and running ... bring it on. 

Another highlight of today was meeting Nurse Dee. As with Nurse Laura last week, she was a joy to speak to, knowledgeable and sure-footed in her handling of all our questions.  She and Laura are great communicators, with good senses of humour and they instil a great sense of confidence in them and how they will care for me going forward. Now that is a wonderful skill and I look forward to working with them over the coming months. Wish me luck ...